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NATIONAL ORGANIZATION FOR RARE DISORDERS | NATIONAL ORGANIZATION FOR RARE DISORDERS

Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.

What's Here

Genetic Disorders
Volunteer Opportunities
Orphan Diseases
Specialized Information and Referral
Mitochondrial Diseases
Health Related Advocacy Groups
Information Clearinghouses
Children and Youth With Disabilities / Health Conditions
Families / Friends of People With Chronic Illnesses

Preschool Special Education Program (PSEP) | Chemung County DSS

Provides referrals to the appropriate school district's Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

What's Here

Disease / Disability Information
Children and Youth With Disabilities / Health Conditions
Specialized Information and Referral

VINCENT SMITH SCHOOL | VINCENT SMITH SCHOOL

Provides individualized programs for students in grades 1-12 with AD/HD and learning disorders.

What's Here

Private Schools
Children and Youth With Disabilities / Health Conditions
Secondary / High Schools
Learning Disabilities
Elementary Schools
Middle Schools
Attention Deficit/Hyperactivity Disorder

VISIONS CENTER ON AGING | VISIONS CENTER ON AGING

Serves older adults who are blind or visually impaired by offering a full array of customized service programs ranging for benefits assistance to health and wellness programs in a fully accessible facility. Also offers a hot dinner meal Monday-Friday.

What's Here

Blindness
Meals
People With Disabilities / Health Conditions
Aging and Disability Resource Centers
Older Adults
Visual Impairments

SULAM-LI | SULAM-LI

Provides a religious school for Jewish children with special needs. Also offers cultural enrichment, parent support groups and socialization groups.

What's Here

Intellectual Disabilities
Jewish Community
Developmental Disabilities
Learning Disabilities
Children and Youth With Disabilities / Health Conditions

UP WEE GROW, INC. | UP WEE GROW, INC.

Provides evaluations and therapies for children birth through age five in their homes or in a preschool/daycare facility setting. Offers services in Arabic, Chinese, Creole, Hindi, Portuguese, Spanish and Urdu. Please call for an appointment.

What's Here

Children and Youth With Disabilities / Health Conditions
Early Intervention for Children With Disabilities / Delays

Disability Related Support Groups | AIM Independent Living Center - Chemung County Outreach Office

Offers many support and peer groups for individuals with disabilities including social and recreational gatherings. The groups are facilitated by individuals. Call for specific information. Groups are available for youth and adults.

What's Here

Parents With Disabilities / Health Conditions
Families / Friends of People With Disabilities
Health / Disability Related Support Groups
Visual Impairments
Deafness
Children and Youth With Disabilities / Health Conditions
Brain Disorders
Hard of Hearing
Adults With Disabilities / Health Conditions

Children with Special Healthcare Needs (CSHNC Program) | Allegany County Department of Health - Main Site

Provides information and referral and advocacy services for health and related topics to families of children, from birth to 21 years of age who have, or are suspected of having a serious or chronic healthcare condition.

What's Here

Protection and Advocacy for Individuals With Disabilities
Specialized Information and Referral
Children and Youth With Disabilities / Health Conditions

Preschool Special Education Program (PSEP) | Yates County Public Health - Main Site

Provides referrals to the appropriate school districts Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

What's Here

Children and Youth With Disabilities / Health Conditions
Specialized Information and Referral

Preschool Special Education Program (PSEP) | Allegany County Department of Health - Main Site

Provides referrals to the appropriate school districts Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

What's Here

Children and Youth With Disabilities / Health Conditions
Specialized Information and Referral

Children and Youth with Special Healthcare Needs (CSHNC Program) | Steuben County Special Children's Services

Provides information and referral services for health and related topics to families of children, from birth to 21 years of age who have, or are suspected of having a serious or chronic healthcare condition.

What's Here

Children and Youth With Disabilities / Health Conditions
Specialized Information and Referral
Protection and Advocacy for Individuals With Disabilities

Preschool Special Education Program (PSEP) | Chemung County DSS

Provides referrals to the appropriate school district's Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

What's Here

Disease / Disability Information
Children and Youth With Disabilities / Health Conditions
Specialized Information and Referral

Disability Related Support Groups | AIM Independent Living Center - Chemung County Outreach Office

Offers many support and peer groups for individuals with disabilities including social and recreational gatherings. The groups are facilitated by individuals. Call for specific information. Groups are available for youth and adults.

What's Here

Parents With Disabilities / Health Conditions
Families / Friends of People With Disabilities
Health / Disability Related Support Groups
Visual Impairments
Deafness
Children and Youth With Disabilities / Health Conditions
Brain Disorders
Hard of Hearing
Adults With Disabilities / Health Conditions

LEARNING TO LEARN CENTER | NORTH SHORE CHILD AND FAMILY GUIDANCE CENTER ADMINISTRATIVE HEADQUARTERS

Provides a range of specialized assessments and evaluations of developmental, learning, neurologic and psychiatric issues in children, adolescents, and young adults. Serves any child ages preschool through young adult who is struggling academically and/or experiencing emotional or behavioral problems related to a neuropsychological deficit. Parent and professional education workshops are offered by North Shore Child and Family Guidance Center staff who have expertise in child development and neuropsychology. Offers school consultation to help educators work with children with neuropsychological deficits more effectively.

What's Here

Workshops / Symposiums
Clinical Psychiatric Evaluation
Neurological Impairments
Children and Youth With Disabilities / Health Conditions
Psychological Assessment
Young Adults
Volunteer Opportunities

LITERACY NASSAU'S NEXT CHAPTER BOOK CLUBS | LITERACY NASSAU

Offers adults with intellectual and developmental disabilities the opportunity to read for pleasure and socialize in the community on a weekly basis.

What's Here

Adults With Disabilities / Health Conditions
Literary Societies / Book Reading Clubs
Health / Disabilities Related Volunteer Opportunities
Developmental Disabilities Social / Recreational Programs

ST. MARY'S HOME CARE | ST. MARY’S HOME & COMMUNITY PROGRAMS

Provides short-term skilled care and support services at home for patients with disabilities and complex medical conditions from newborn to 44 years of age. Offers a family-centered, team approach to caregiving with the goal of improving patients' independence and quality of life. Treats patients with a wide spectrum of health conditions including Cerebral Palsy, HIV/AIDS, seizures, Failure to Thrive, Hydrocephalus, Diabetes and Asthma. Offers physical, occupational, speech and respiratory therapy, specialized pediatric nursing, private duty nursing, home health and personal care aides, skilled nursing visits, palliative care, medical equipment and supplies.

What's Here

Home Health Care
Parents With Disabilities / Health Conditions
People With Chronic Illnesses
Children and Youth With Disabilities / Health Conditions

NURSING HOME TRANSITION AND DIVERSION GERIATRIC WAIVER | FAMILY SERVICE LEAGUE - WILLIAM FLLOYD FAMILY CENTER

Provides persons with disabilities and senior citizens an opportunity to live in the community by offering services such as re-teaching basic skills, environmental modifications to provide accessibility and safety to homes, community transitional services and intensive service coordination.

What's Here

Transitional Case / Care Management
Older Adults
People With Disabilities / Health Conditions

PROJECT VETERANS' INDEPENDENCE | PROJECT VETERANS' INDEPENDENCE

Project Veterans' Independence is a Catholic Charities program partnership with the Department of Housing and Urban Development (HUD). Our goal is to place homeless veterans into permanent housing and help them live independently within their communities while offering counseling and access to support services. Supportive case management, peer-to-peer support groups and crisis intervention services are available to all clients.

What's Here

Case / Care Management
Homeless Veterans
HUD Approved Counseling Agencies
Crisis Intervention
Veterans With Disabilities
Homeless Permanent Supportive Housing
Volunteers

EARLY CHILDHOOD HOME AND COMMUNITY SERVICES | EARLY CHILDHOOD SERVICES - RONKONKOMA

Offers a wide range of specialized services, home and community based, to children from birth to age 21. Services include special education, ABA (applied behavior analysis), Discrete Trial Instruction, speech, occupational and physical therapy, psychology and social work and Parent Education and Counseling.

What's Here

Physical Disabilities
Multiple Disabilities
Speech Therapy
Pediatric Occupational Therapy
Occupational Therapy
Developmental Disabilities
Learning Disabilities
Children and Youth With Disabilities / Health Conditions
Students With Disabilities
Special Education
Case / Care Management
Early Intervention for Children With Disabilities / Delays
Physical Therapy

AIRBORNE TRI TEAM | AIRBORNE TRI TEAM

Provides mentally and physically challenged veterans with opportunities, physical challenges and goal oriented physical achievements to maximize their self-esteem.

What's Here

Veterans With Disabilities

SATURDAY RESPITE PROGRAM | EAST END DISABILITY ASSOCIATES

Provides recreation respite services for families with developmentally disabled children ages 21 and under two Saturdays per month.

What's Here

Children's Out of Home Respite Care
Families / Friends of People With Disabilities
Developmental Disabilities
Autism Spectrum Disorder
Children and Youth With Disabilities / Health Conditions
Caregivers

EDUCATION ADVOCACY FOR PARENTS WITH DEVELOPMENTAL DISABILITIES | LONG ISLAND ADVOCACY CENTER - NASSAU

Provides assistance to developmentally disabled parents with navigating the school system for their children. Call for further information.

What's Here

Parents With Disabilities / Health Conditions
Special Education Advocacy

ST. MARY'S HOME CARE ASTHMA MANAGEMENT PROGRAM | ST. MARY'S HOME CARE ASTHMA MANAGEMENT PROGRAM

Offers a team approach (nurses, social workers, therapists and nutritionists) to provide patient/family centered asthma education and manage asthma care at home. Services include medication management, environmental and lifestyle assessment, emergency management and health monitoring through a telehealth program. Works collaboratively with patient's physician to follow treatment plans and manage asthma effectively. Communicates with school health staff and educators as needed to support children attending school.

What's Here

Asthma
Home Telemedicine
Children and Youth With Disabilities / Health Conditions
Home Health Care

SIBLING SUPPORT | BIG BROTHERS BIG SISTERS OF LONG ISLAND

Specializes in working with children who have a brother or sister with special needs. Adult volunteer mentors give these children special one-on-one attention in a one-to-one, professionally supported relationship, monitored by dedicated case manager. Volunteers are screened and trained. Also match the special needs children with volunteers whenever appropriate.

What's Here

Mentoring Services Volunteer Opportunities
Adult / Child Mentoring Programs
Children and Youth With Disabilities / Health Conditions

ONLINE TRAINING | COALITION TO SALUTE AMERICA'S HEROES

Through a partnership with a leading provider of e-learning, qualified service members can take free, self-paced classes from among more than 1500 courses available, earning credit toward college degrees, continuing education units and business certifications with the goal of becoming self-sufficient.

What's Here

Families of Military Personnel / Veterans
Internet Courses
Operation New Dawn Veterans
Veterans
Veterans With Disabilities
Veteran Education Benefits
Operation Enduring Freedom Veterans
Operation Iraqi Freedom Veterans