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Provides educational and informational programs on MS. Also provides financial assistance, support groups, MS Service Day, scholarships, care management and other support services.

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Subject Specific Public Awareness/Education
Health Related Advocacy Groups
Answers questions; provides information; and offers support on health and health insurance post enrollment-related issues so that individuals and families get health care they need.

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Health Related Advocacy Groups
Health Treatment Options Information
Health/Disability Related Counseling
Health Insurance Marketplaces

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Health / Disability Related Support Groups
Health Related Advocacy Groups

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Health Related Advocacy Groups
Funding
Disease / Disability Information

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Health Related Advocacy Groups

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Health / Disability Related Support Groups
Health Related Advocacy Groups
Disease / Disability Information
Brings together health care and health care related organizations to share information, conduct assessments, develop plans and fund projects to address health education and awareness.

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Professional Skills Development Support
Leadership Development
Health Related Advocacy Groups
Wellness Programs
Free literature and video presentations available.

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Health Related Advocacy Groups
Health Treatment Options Information

Provides coordination of care for children and youth who have special health care needs. This program matches families with community resources, provides referrals, advocacy, and assists with navigating systems of care.

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Special Education Advocacy
Health Related Advocacy Groups
* Assists with complaints or questions regarding the health care system.* Helps claim benefits when HMO denies coverage.* Assists with health care billing and payment problems.* Helps obtain guaranteed health benefits.* Investigates when insurance coverage is lost.* Public awareness and education regarding health care rights.

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Insurance Claims Assistance
General Health Insurance Information/Counseling
Health Law
Health Related Advocacy Groups
* Provides a linkage of families and individuals who have a brain injury, which includes: Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers. Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings. Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment. Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety. Training: Connection with service providers, hospitals, schools, etc. to conducts trainings about traumatic and acquired brain injury.

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Health Related Advocacy Groups
Education Advocacy Groups
Family Resource Centers/Outreach
Individual Advocacy
Support services via website to all health care patients with conditions of Alzheimer's, epilepsy, stroke, brain trauma, mental illnesses, etc. in building websites to share health updates, receive messages of encouragement and coordinate everyday help.
Promotes the benefits of walking via "mock prescriptions" to encourage people to walk, coordinates with local towns and villages to make streets safer for walking, offers a database listing year-round walking events and trails, and provides and online portal for members to track their progress.

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Community Wellness Programs
Walking Programs
Physical Activity and Fitness Education / Promotion
Health Related Advocacy Groups
Seeks to promote and enhance the quality, accessibility, and availability of home care. Interfaces with state and federal lawmaking bodies, regulatory agencies, and fiscal intermediaries to interpret, challenge, or support regulations that affect home health care and services. Actively involved in influential councils, committees, and task forces. Membership totals over 500 agencies, organizations, and associate members. Website offers search capability to locate providers throughout New York State.

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Home Care / Hospice Associations
Health Related Advocacy Groups
Home Health Care
Offers community health education and workshops related to patient safety and advocacy. Call for more information.

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Health Related Advocacy Groups
Subject Specific Public Awareness / Education
Newcomers Resource Center an FCA program that will provide immigrants and refugees with a broad array of case management short term counseling, family support, child care and easy access for legal help with critical immigrant concerns, both English and Spanish.

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Disaster Related Case Management
Health Related Advocacy Groups
Crisis Intervention Hotlines / Helplines
* Provides a linkage of families and individuals who have a brain injury, which includes:
  • Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers
  • Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings
  • Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment
  • Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety
  • Training: Connection with service providers, hospitals, schools, etc. to conducts training's about traumatic and acquired brain injury

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Bicycle Safety Education
Family Resource Centers/Outreach
Advocacy
Health Related Advocacy Groups
Education Advocacy Groups
Dedicated to helping children and adults with disorders of growth and growth hormone through research, education, support, and advocacy. HGF provides: research support, family education and advocacy, public outreach & awareness, support of parents of children with growth disorders, support of adults with growth hormone deficiency, training for growth specialists and education for healthcare providers.
Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.

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Genetic Disorders
Volunteer Opportunities
Orphan Diseases
Specialized Information and Referral
Mitochondrial Diseases
Health Related Advocacy Groups
Information Clearinghouses
Children and Youth With Disabilities / Health Conditions
Families / Friends of People With Chronic Illnesses
Provides improved access to quality healthcare services in the town of East Hampton. Offers primary healthcare to uninsured through programs at the East Hampton Healthcare Facility. Funds programs to support healthcare access and public health improvement. Provides grant funds to community organizations sponsoring healthcare activities.

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Community Foundations
Health Related Advocacy Groups
Charities / Grantmaking Organizations
Angels for Warriors connects veterans with the resources they have earned from their service to our country. We assist Veteran's transition to permanent housing, register them for veteran benefits and advocate on the veteran's behalf for medical care.

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Transitional Housing / Shelter
Veteran Benefits Assistance
Volunteer Opportunities
Health Related Advocacy Groups
Veteran Compensation and Pension Benefits
Provides support services and advocacy to low income Nassau County residents. Facilities access to health care and related services for pregnant women, mothers and infants. Offers Career Path TANF employment services (CPTE) and Displaced Homemakers Program (DHP). Provides job training workshops, jobs referrals, resume writing and job placement. Assists clients in obtaining needed services, housing assistance and court advocacy. Makes education referrals for GED, adult education and ESOL classes. Provides support for the elderly, undocumented residents and emergency assistance for families. Youth services include Head Start, enrichment, sports, leadership and prevention programs.

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Job Search / Placement
Early Head Start
TANF
Health Related Advocacy Groups
Displaced Homemaker Employment Programs

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Health Insurance Premium Assistance
Specialized Information and Referral
Disease / Disability Information
Funding
Peer to Peer Networking
Prescription Expense Assistance
Health Related Advocacy Groups
Incidental Medical Expense Assistance
Medical Care Expense Assistance
Offers individualized case management provided by a team of experienced and compassionate social workers, Child-Life specialists, art Therapists specialists for children with a life-threatening illness and their families. Services include emotional support, palliative/bereavement support, financial assistance, and advocacy support.

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Health / Disability Related Support Groups
Bereavement Support Groups
Health Related Advocacy Groups
Medical Expense Assistance
Undesignated Temporary Financial Assistance
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.

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Employment Related Advocacy Groups
Accessibility Related Standards / Legislation Compliance
ADA Implementation Assistance
Health Related Advocacy Groups
Accessibility Information
Education Advocacy Groups
Disability Rights Groups