Search
1-25 of 28
National Organization for Rare Disorders (Service Group)
What's Here
Prescription Expense Assistance
Medical Care Expense Assistance
Incidental Medical Expense Assistance
Health Related Advocacy Groups
Peer to Peer Networking
Health Insurance Premium Assistance
Funding
Disease / Disability Information
Specialized Information and Referral
NATIONAL ORGANIZATION FOR RARE DISORDERS | NATIONAL ORGANIZATION FOR RARE DISORDERS
Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.
Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.
What's Here
Genetic Disorders
Volunteer Opportunities
Orphan Diseases
Specialized Information and Referral
Mitochondrial Diseases
Health Related Advocacy Groups
Information Clearinghouses
Children and Youth With Disabilities / Health Conditions
Families / Friends of People With Chronic Illnesses
THE EAST HAMPTON HEALTHCARE FOUNDATION | THE EAST HAMPTON HEALTHCARE FOUNDATION
Provides improved access to quality healthcare services in the town of East Hampton. Offers primary healthcare to uninsured through programs at the East Hampton Healthcare Facility. Funds programs to support healthcare access and public health improvement. Provides grant funds to community organizations sponsoring healthcare activities.
Provides improved access to quality healthcare services in the town of East Hampton. Offers primary healthcare to uninsured through programs at the East Hampton Healthcare Facility. Funds programs to support healthcare access and public health improvement. Provides grant funds to community organizations sponsoring healthcare activities.
What's Here
Community Foundations
Health Related Advocacy Groups
Charities / Grantmaking Organizations
HUMAN GROWTH FOUNDATION | HUMAN GROWTH FOUNDATION
Dedicated to helping children and adults with disorders of growth and growth hormone through research, education, support, and advocacy. HGF provides: research support, family education and advocacy, public outreach & awareness, support of parents of children with growth disorders, support of adults with growth hormone deficiency, training for growth specialists and education for healthcare providers.
Dedicated to helping children and adults with disorders of growth and growth hormone through research, education, support, and advocacy. HGF provides: research support, family education and advocacy, public outreach & awareness, support of parents of children with growth disorders, support of adults with growth hormone deficiency, training for growth specialists and education for healthcare providers.
What's Here
Health Related Advocacy Groups
FACTS | BRAIN INJURY ASSOCIATION OF NEW YORK STATE
* Provides a linkage of families and individuals who have a brain injury, which includes: Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers. Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings. Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment. Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety. Training: Connection with service providers, hospitals, schools, etc. to conducts trainings about traumatic and acquired brain injury.
* Provides a linkage of families and individuals who have a brain injury, which includes: Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers. Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings. Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment. Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety. Training: Connection with service providers, hospitals, schools, etc. to conducts trainings about traumatic and acquired brain injury.
What's Here
Health Related Advocacy Groups
Family Resource Centers/Outreach
Individual Advocacy
Education Advocacy Groups
FACTS | BRAIN INJURY ASSOCIATION OF NEW YORK STATE
* Provides a linkage of families and individuals who have a brain injury, which includes:
- Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers
- Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings
- Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment
- Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety
- Training: Connection with service providers, hospitals, schools, etc. to conducts training's about traumatic and acquired brain injury
* Provides a linkage of families and individuals who have a brain injury, which includes:
- Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers
- Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings
- Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment
- Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety
- Training: Connection with service providers, hospitals, schools, etc. to conducts training's about traumatic and acquired brain injury
What's Here
Health Related Advocacy Groups
Advocacy
Education Advocacy Groups
Family Resource Centers/Outreach
Bicycle Safety Education
CHILDREN & YOUTH WITH SPECIAL HEALTH CARE NEEDS (CYSHCN) | ONONDAGA COUNTY HEALTH DEPARTMENT
Provides coordination of care for children and youth who have special health care needs. This program matches families with community resources, provides referrals, advocacy, and assists with navigating systems of care.
Provides coordination of care for children and youth who have special health care needs. This program matches families with community resources, provides referrals, advocacy, and assists with navigating systems of care.
What's Here
Health Related Advocacy Groups
Special Education Advocacy
IMMIGRATION RESOURCE SERVICES | FAMILY AND CHILDREN'S ASSOCIATION
Newcomers Resource Center an FCA program that will provide immigrants and refugees with a broad array of case management short term counseling, family support, child care and easy access for legal help with critical immigrant concerns, both English and Spanish.
Newcomers Resource Center an FCA program that will provide immigrants and refugees with a broad array of case management short term counseling, family support, child care and easy access for legal help with critical immigrant concerns, both English and Spanish.
What's Here
Disaster Related Case Management
Health Related Advocacy Groups
Crisis Intervention Hotlines / Helplines
ADVOCACY SERVICES | INDEPENDENT LIVING - MIDDLETOWN
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
What's Here
Employment Related Advocacy Groups
Accessibility Related Standards / Legislation Compliance
ADA Implementation Assistance
Health Related Advocacy Groups
Accessibility Information
Education Advocacy Groups
Disability Rights Groups
ADVOCACY PROGRAM | COMMUNITY CONNECTIONS OF FRANKLIN COUNTY
Empower individuals and families so that they can make the right decisions concerning issues effecting their life by connecting and accompanying individuals to service providers. They offer one-on-one mutual support, benefits advice, wellness recovery action planning, enabling individuals to make informed decisions on their own, assists in finding community resources. Help in understanding information regarding State Education Laws, mental health laws, and school district policies to be sure that families are being treated in accordance with the law and/or policy.
Empower individuals and families so that they can make the right decisions concerning issues effecting their life by connecting and accompanying individuals to service providers. They offer one-on-one mutual support, benefits advice, wellness recovery action planning, enabling individuals to make informed decisions on their own, assists in finding community resources. Help in understanding information regarding State Education Laws, mental health laws, and school district policies to be sure that families are being treated in accordance with the law and/or policy.
What's Here
Health Related Advocacy Groups
FAMILY SUPPORT PROGRAM | FRIENDS OF KAREN, INC.
Offers individualized case management provided by a team of experienced and compassionate social workers, Child-Life specialists, art Therapists specialists for children with a life-threatening illness and their families. Services include emotional support, palliative/bereavement support, financial assistance, and advocacy support.
Offers individualized case management provided by a team of experienced and compassionate social workers, Child-Life specialists, art Therapists specialists for children with a life-threatening illness and their families. Services include emotional support, palliative/bereavement support, financial assistance, and advocacy support.
What's Here
Health / Disability Related Support Groups
Bereavement Support Groups
Health Related Advocacy Groups
Medical Expense Assistance
Undesignated Temporary Financial Assistance
ADVOCACY SERVICES | INDEPENDENT LIVING
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
What's Here
Employment Related Advocacy Groups
Accessibility Related Standards / Legislation Compliance
ADA Implementation Assistance
Health Related Advocacy Groups
Accessibility Information
Education Advocacy Groups
Disability Rights Groups
ADVOCACY SERVICES | INDEPENDENT LIVING - MONTICELLO
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
What's Here
Employment Related Advocacy Groups
Accessibility Related Standards / Legislation Compliance
ADA Implementation Assistance
Health Related Advocacy Groups
Accessibility Information
Education Advocacy Groups
Disability Rights Groups
COMMUNITY EDUCATION - NATIONAL MULTIPLE SCLEROSIS SOCIETY | NATIONAL MULTIPLE SCLEROSIS SOCIETY, UPSTATE NEW YORK CHAPTER
Provides educational and informational programs on MS. Also provides financial assistance, support groups, MS Service Day, scholarships, care management and other support services.
Provides educational and informational programs on MS. Also provides financial assistance, support groups, MS Service Day, scholarships, care management and other support services.
What's Here
Subject Specific Public Awareness/Education
Health Related Advocacy Groups
INFORMATION AND EDUCATION - LUPUS FOUNDATION | LUPUS FOUNDATION OF SOUTHERN NEW YORK
Free literature and video presentations available.
Free literature and video presentations available.
What's Here
Health Treatment Options Information
Health Related Advocacy Groups
COMMUNITY HEALTH ADVOCATES - CHENANGO HEALTH NETWORK | CHENANGO HEALTH NETWORK
Answers questions; provides information; and offers support on health and health insurance post enrollment-related issues so that individuals and families get health care they need.
Answers questions; provides information; and offers support on health and health insurance post enrollment-related issues so that individuals and families get health care they need.
What's Here
Health Insurance Marketplaces
Health Treatment Options Information
Health Related Advocacy Groups
Health/Disability Related Counseling
HEALTH CARE BUREAU | NEW YORK STATE ATTORNEY GENERAL
* Assists with complaints or questions regarding the health care system.* Helps claim benefits when HMO denies coverage.* Assists with health care billing and payment problems.* Helps obtain guaranteed health benefits.* Investigates when insurance coverage is lost.* Public awareness and education regarding health care rights.
* Assists with complaints or questions regarding the health care system.* Helps claim benefits when HMO denies coverage.* Assists with health care billing and payment problems.* Helps obtain guaranteed health benefits.* Investigates when insurance coverage is lost.* Public awareness and education regarding health care rights.
What's Here
Insurance Claims Assistance
Health Law
Health Related Advocacy Groups
General Health Insurance Information/Counseling
RURAL HEALTHCARE ALLIANCE - CCE DELAWARE | CORNELL COOPERATIVE EXTENSION - DELAWARE
Brings together health care and health care related organizations to share information, conduct assessments, develop plans and fund projects to address health education and awareness.
Brings together health care and health care related organizations to share information, conduct assessments, develop plans and fund projects to address health education and awareness.
What's Here
Wellness Programs
Health Related Advocacy Groups
Leadership Development
Professional Skills Development Support
SERVICE SUPPORT VIA WEBSITE | CARING BRIDGE
Support services via website to all health care patients with conditions of Alzheimer's, epilepsy, stroke, brain trauma, mental illnesses, etc. in building websites to share health updates, receive messages of encouragement and coordinate everyday help.
Support services via website to all health care patients with conditions of Alzheimer's, epilepsy, stroke, brain trauma, mental illnesses, etc. in building websites to share health updates, receive messages of encouragement and coordinate everyday help.
What's Here
Health Related Advocacy Groups
COMMUNITY HEALTH SERVICES EDUCATION AND SUPPORT FOR PATIENT SAFETY | COMMUNITY HEALTH SERVICES EDUCATION AND SUPPORT FOR PATIENT SAFETY
Offers community health education and workshops related to patient safety and advocacy. Call for more information.
Offers community health education and workshops related to patient safety and advocacy. Call for more information.
What's Here
Health Related Advocacy Groups
Subject Specific Public Awareness / Education
Huntington's Disease Society of America - Upstate New York Chapter (Service Group)
What's Here
Health / Disability Related Support Groups
Health Related Advocacy Groups
Disease / Disability Information
National Federation of the Blind - Buffalo Chapter (Service Group)
What's Here
Health / Disability Related Support Groups
Health Related Advocacy Groups
RESOURCES AND ADVOCACY | ANGELS FOR WARRIORS
Angels for Warriors connects veterans with the resources they have earned from their service to our country. We assist Veteran's transition to permanent housing, register them for veteran benefits and advocate on the veteran's behalf for medical care.
Angels for Warriors connects veterans with the resources they have earned from their service to our country. We assist Veteran's transition to permanent housing, register them for veteran benefits and advocate on the veteran's behalf for medical care.
What's Here
Transitional Housing / Shelter
Veteran Benefits Assistance
Volunteer Opportunities
Health Related Advocacy Groups
Veteran Compensation and Pension Benefits