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Provides comprehensive care to cystic fibrosis patients from infancy to adulthood. Offers a holistic and family focused approach to patient care with an emphasis on promoting normal physical and emotional growth and development. Goals include slowing the progression of the disease, prevention and treatment of complications and helping the patients integrate the disease and strenuous medical treatments into daily life. Provides a home care program. Parent support groups are available on a as needed basis.
Provides comprehensive care to cystic fibrosis patients from infancy to adulthood. Offers a holistic and family focused approach to patient care with an emphasis on promoting normal physical and emotional growth and development. Goals include slowing the progression of the disease, prevention and treatment of complications and helping the patients integrate the disease and strenuous medical treatments into daily life. Provides a home care program. Parent support groups are available on a as needed basis.
Categories
Specialty Hospitals
Infants
Condition Specific Treatment
Cystic Fibrosis
Home Health Care
Families
Adolescents
Cystic Fibrosis Clinics
Families and Individuals Needing Support
Children's Hospitals
Hospitals
Specialty Medicine
Adults
Disease / Disability Specific Screening / Diagnosis
Children
Infants / Toddlers
Certain inherited diseases occur more frequently in a given ethnic or racial group than in the general population. The Jewish Genetic Disease Program provides education, genetic screening, genetic counseling and clinical services for individuals or families commonly affected by these diseases. Fanconi Anemia (Type C), Tay-Sachs Disease, Canavan Diseases, Niemann-Pick Disease, Bloom Syndrome,Mucolipodosis (Type lV), Gaucher Disease (Type l), Familial Dysautonomia and Cystic Fibrosis are among the many genetic diseases that have been tested.
Certain inherited diseases occur more frequently in a given ethnic or racial group than in the general population. The Jewish Genetic Disease Program provides education, genetic screening, genetic counseling and clinical services for individuals or families commonly affected by these diseases. Fanconi Anemia (Type C), Tay-Sachs Disease, Canavan Diseases, Niemann-Pick Disease, Bloom Syndrome,Mucolipodosis (Type lV), Gaucher Disease (Type l), Familial Dysautonomia and Cystic Fibrosis are among the many genetic diseases that have been tested.
Categories
Cystic Fibrosis
Genetic Disorders
Gaucher's Disease
Carrier / Predictive Genetic Testing
Families
Hospitals
Specialty Medicine
Disabilities and Health Conditions
Genetic Counseling
Children
Provides information and referral to people with cystic fibrosis and raises money for cystic fibrosis research.
Provides information and referral to people with cystic fibrosis and raises money for cystic fibrosis research.
Categories
Charities / Grantmaking Organizations
Volunteer Opportunities
Cystic Fibrosis
Information and Referral