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DISABILITY INFORMATION AND SUPPORT SERVICES | MUSCULAR DYSTROPHY ASSOCIATION INC

* Provides comprehensive health care services and support to MDA families.

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Health/Disability Related Support Groups
Disease/Disability Information

CROHN'S AND COLITIS EDUCATION | CROHNS AND COLITIS FOUNDATION - UPSTATE NEW YORK CHAPTER

Offers information in various format about colitis, including ulcerative colitis, and Crohn's Disease.

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Internet Information Resources
Printed/Printable Materials
Disease/Disability Information

SUNY UPSTATE STROKE CENTER | SUNY UPSTATE MEDICAL UNIVERSITY

Provides comprehensive stroke care through treatment, prevention, education, support, and research.

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Disease/Disability Information
Stroke Rehabilitation
Hospital Based Outpatient Services

LIVING WELL WITH A CHRONIC CONDITION | HERKIMER COUNTY HEALTHNET INC.

* Provides a Chronic Disease Self-Management (CDSM) program Living Well with a Chronic Condition, a free interactive 6-week workshop series that meets once a week to help people with chronic conditions such as diabetes, breathing problems, depression, anxiety, heart conditions, and arthritis. Sessions meet for 2.5 hours in local community settings across the region. Participants will:
  • Gain support from peers that have similar conditions
  • Identify stressors and learn new coping skills
  • Learn to talk to family, friends, and health care professionals about their chronic conditions
  • Find practical ways to deal with pain and fatigue
  • Discuss ways to maintain and improve strength, flexibility, and endurance
  • Set goals and make a step-by-step plan to improve health and life
* Provides a Diabetes Self-Management (DSM) program "Living Well with Diabetes," a free 2.5-hour workshop once a week for 6 weeks. Participants will gain support to:
  • Manage symptoms
  • Communicate effectively with doctors and other healthcare professionals
  • Ease frustration
  • Fight fatigue and pain
  • Eat healthier and read nutrition labels
  • Keep blood sugar in check
  • Make daily tasks easier
* Provides a Chronic Pain Self-Management (CPSM) "Living Well with Chronic Pain," a free 6-week educational workshop series for those suffering with chronic pain including:
  • Support from others with chronic pain
  • Tools to manage symptoms
  • Goal setting and problem solving
  • Safe exercise information
  • Way to cope with difficult emotions
  • Ways to talk to doctors, family and friends about your needs

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Chronic Disease Self Management Programs
Disease/Disability Information

SIGHT-RELATED INFORMATION AND REFERRAL - AVRE | ASSOCIATION FOR VISION REHABILITATION AND EMPLOYMENT

Provides wide range of information and referral services on peer groups, related health issues, low vision assistance, adaptive equipment, and other helpful organizations (local, state, national, international). Provides speakers for community organizations.

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Disease/Disability Information

CYSTIC FIBROSIS FOUNDATION - CENTRAL NEW YORK CHAPTER | CYSTIC FIBROSIS FOUNDATION

raises money to support cystic fibrosis clinics and research provides information to families with newly-diagnosed cystic fibrosis patients and makes referrals to cystic fibrosis clinic at SUNY Upstate Medical University, Syracuse.

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Disease/Disability Information

NORTHEAST KIDNEY FOUNDATION | NORTHEAST KIDNEY FOUNDATION

* Provides fundraising and support for prevention of diseases of the kidney and urinary tract* Solicits donations* Offers free kidney risk assessments* Offers professional workshops and meetings, support for local research, seminars for kidney nurses, social workers, dietitians, and technicians

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Disease/Disability Information
Health/Disability Related Support Groups

NORTHEAST KIDNEY FOUNDATION | NORTHEAST KIDNEY FOUNDATION

* Provides fundraising and support for prevention of diseases of the kidney and urinary tract* Solicits donations* Offers free kidney risk assessments* Offers professional workshops and meetings, support for local research, seminars for kidney nurses, social workers, dietitians, and technicians

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Disease/Disability Information
Health/Disability Related Support Groups

COMMUNITY AND CONSUMER SERVICES | AMERICAN DIABETES ASSOCIATION

* Provides advocacy, research, and education about diabetes to professionals and the general public.* Offers fundraising events.

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Disease/Disability Information
Public Awareness/Education
Special Libraries

LLS COMMUNITY - LEUKEMIA AND LYMPHOMA SOCIETY | LEUKEMIA AND LYMPHOMA SOCIETY

An online gathering place for patients, caregivers and healthcare professionals to share experiences and provide support

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Disease/Disability Information
Clinical Trials Research Projects
Health/Disability Related Counseling

COMMUNITY AND CONSUMER SERVICES | AMERICAN DIABETES ASSOCIATION

* Provides advocacy, research, and education about diabetes to professionals and the general public.* Offers fundraising events.

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Disease/Disability Information
Public Awareness/Education
Special Libraries

DISABILITY INFORMATION AND SUPPORT SERVICES | MUSCULAR DYSTROPHY ASSOCIATION INC

* Provides comprehensive health care services and support to MDA families.

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Health/Disability Related Support Groups
Disease/Disability Information

ADVOCACY AND REFERRAL - ALZHEIMER'S ASSOCIATION | ALZHEIMER'S ASSOCIATION, CENTRAL NEW YORK CHAPTER

Advocates represent Association on Alzheimer's-related issues to federal, state, and local government and to health care and long-term care providers. The benefit is to increase federal research funding, growth in state-supported services, and improvement in quality of care for those in residential facilities.

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Subject Specific Public Awareness/Education
Issue Advocacy
Disease/Disability Information

LUPUS FOUNDATION OF SOUTHERN NEW YORK | LUPUS ALLIANCE OF AMERICA, SOUTHERN TIER AFFILIATE

Information on lupus and support for patients

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Scholarships
Disease/Disability Information

PUBLIC HEALTH EDUCATION | OSWEGO COUNTY HEALTH DEPARTMENT

Provides educational programs to the public (schools, churches, civic groups, organizations, work sites) on a variety of health topics such as playground, sun, and traffic safety, poison control, and emergency preparedness.
Offers a six week Healthy Living Workshop for individuals living with, or caring for someone with, a chronic disease.

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General Health Education Programs
Oral Health Education/Information
Disaster Preparedness Information
General Sexuality/Reproductive Health Education
Disease/Disability Information
General Safety Education
Pest Information
Workshops/Symposiums
Chronic Disease Self Management Programs

CANCER RESOURCE CENTER OF THE FINGER LAKES | CANCER RESOURCE CENTER OF THE FINGER LAKES

CRC serves everyone affected by cancer in the Finger Lakes region. They can answer questions, listen to concerns and help clients understand their options. They can talk to the person with cancer, their family members and friends, or some combination. (Please note that they cannot provide medical advice.)Information and support:1. Monthly e-newsletter with updates, links to Internet resources and cancer-related news.2. Wellness activities including gentle Zoom yoga 3. Resources for during and after treatment, such as financial assistance, insurance and legal issues and paying for prescriptions.4. The Emily Virkler Boutique: new and used wigs, hats, scarves and post-mastectomy supplies such as prostheses and bras.5. Lending library of books on cancer and other health- and wellness-related topics.6. Community of staff, patients, and caregivers who can relate to what you're going through.7. 1:1 Peer Mentor program that matches clients to someone who has had a similar experience for support.8. Monthly educational "Living Well With Cancer" program.Several types of support groups weekly, including:1. Groups for various types of cancer2. In-person men's breakfast group3. Women's group on Zoom4. Caregivers' group for family and friends of those with cancer5. Open group for those who have or have had cancer6. Colorectal Cancer group, Prostate cancer group, Bladder cancer groupLimited financial support: We have three designated funds:1. The Emily Virkler Fund: Helps pay for items like wigs, mastectomy bras, and mastectomy prostheses; also covers needed medical items for patients of all genders.2. The ngel Fund: Helps pay for various expenses that arise from cancer diagnosis and treatment.3. The Tapan Mitra Fund: Helps patients and caregivers pay for transportation locally (e.g. gas to drive to appointments) and out-of-town (e.g. to travel to Buffalo, Rochester, or NYC for appointments).Please note: CRC can no longer provide free rides on Cornell's Campus-to-Campus bus to and from NYC. However, if you are facing financial hardship due to cancer and treatment, apply for help from the Tapan Mitra Fund, specifically designed to help patients and caregivers access transportation and out-of-town treatment and second opinions.Anyone affected by cancer is welcome, regardless of where they or their loved one is receiving treatment or when they were diagnosed.

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Health/Disability Related Support Groups
Disease/Disability Information
Non-Emergency Medical Transportation

EDUCATION SERVICES | AMERICAN LIVER FOUNDATION

* Offers educational programs for health care professionals and interested lay-persons on liver disease.

* Organizes and sponsors support groups and informational programs.

* Provides fundraisers and support for research.

* Offers support and promotion of Gift of Life Organ Donor Program.

* Offers liver wellness and drug awareness programs for primary school-aged children.

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Disease/Disability Information
Charities/Grantmaking Organizations
Wellness Programs
Public Awareness/Education
Special Libraries

ALZHEIMER'S EDUCATION PROGRAMS | ALZHEIMER'S ASSOCIATION, CENTRAL NEW YORK CHAPTER

Offers educational programs for families and individuals facing Alzheimer's as well as for the community.

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Disease/Disability Information

FACTS: FAMILY ADVOCACY, COUNSELING AND TRAINING SERVICES | BRAIN INJURY ASSOCIATION OF NEW YORK STATE

Provides coordinators to assist and support families to understand the current system of services and benefits, and how to navigate them, also links families to medical and rehabilitation services in the community. Also educates families, individuals, and care providers on brain injury and its impact, connects families and individuals to other support groups, and offers support and advocacy for families dealing with the school system.

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School System Advocacy
Disease/Disability Information
Specialized Information and Referral
General Benefits and Services Assistance

THE ARC OTSEGO QUALITY LIFE PLANNING | OTSEGO COUNTY CHAPTER, NYSARC, INC.

Starting with the individual's strengths and interests and emphasizing personal choice, The Arc Otsego offers comprehensive network of community-based programs and services that encourage individuals with intellectual and other developmental disabilities. Assisst with medicaid service coordination, obtaining respite services, skill training assistance, environmental modifications, adaptive technologies and guardianship.

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Medicaid Applications
Pediatric Developmental Screening
Protection and Advocacy for Individuals With Disabilities
Parenting Skills Classes
Family Resource Centers/Outreach
Disease/Disability Information
General Benefits and Services Assistance
Adult Day Programs
Adult In Home Respite Care
Day Treatment for Adults With Developmental Disabilities
Pediatric Developmental Assessment

HUNTINGTON'S DISEASE INFORMATION AND REFERRAL - HUNTINGTON'S DISEASE SOCIETY | HUNTINGTON'S DISEASE SOCIETY OF AMERICA - GREATER NEW YORK CHAPTER

For those who have found out they or a loved one have Huntington''s Disease, write for information about current problems and those possible in the future.

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Disease/Disability Information

EDUCATION SERVICES | AMERICAN HEART ASSOCIATION OF MOHAWK VALLEY

* Provides information on prevention, diagnosis and treatment of heart diseases and stroke.

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Disease/Disability Information

Campbell Savona Support Group | Campbell Christian Missionary Alliance Church

Provides education and support to individuals with diabetes.

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Disease / Disability Information
Diabetes
Health / Disability Related Support Groups

Disability Information and Support Services | Western New York and Fingerlakes Developmental Disabilities Regional Office (DDRO)

Provides information and referral, family reimbursements, respite, advocacy, counseling, crisis intervention, home care, recreation, training, and transportation planning services for individuals with developmental disabilities.

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Disease / Disability Information
Developmental Disabilities
Protection and Advocacy for Individuals With Disabilities

Disability Information and Support Services | Western New York and Finger Lakes Developmental Disabilities Service Office (DDSO)

Provides information and referral, family reimbursements, respite, advocacy, counseling, crisis intervention, home care, recreation, training, and transportation planning services for individuals with developmental disabilities.

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Disease / Disability Information
Developmental Disabilities
Protection and Advocacy for Individuals With Disabilities