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National Organization for Rare Disorders (Service Group)

What's Here

Prescription Expense Assistance
Medical Care Expense Assistance
Incidental Medical Expense Assistance
Health Related Advocacy Groups
Peer to Peer Networking
Health Insurance Premium Assistance
Funding
Disease / Disability Information
Specialized Information and Referral

Chautauqua Region Multiple Sclerosis Society (Service Group)

What's Here

Health / Disability Related Social Clubs
Disease / Disability Information

Spina Bifida of Western New York, Inc. (Service Group)

What's Here

Health / Disability Related Social Clubs
Undesignated Temporary Financial Assistance
Health / Disability Related Support Groups
Disease / Disability Information
Specialized Information and Referral
Adapted Sports / Games

Parkinson's Foundation NY/NJ Chapter (Service Group)

What's Here

Disease / Disability Information
Health / Disability Related Support Groups

Community Health Center of Niagara

Offers complete primary medical and dental care for the entire family. Services include pre-health maintenance, rapid HIV test (15 minutes), tuberculosis testing, COVID-19 testing, complete lab services, GYN services, social work services, short-term counseling, full dental care, personalized education about chronic illnesses, and smoking cessation. Family Planning Benefit Program is a direct Medicaid public health insurance program for individuals and families who need family planning services, with no premiums or co-pays for services. Program is intended to increase access to confidential family planning services and to enable individuals of any age and sex to prevent or reduce the incidence of unintended pregnancies. Offers a free Thanksgiving Turkey Giveaway each year, along with offerings of donated canned goods, hats, and gloves. ##REENTRY##

What's Here

Smoking / Vaping Cessation
Obstetrics / Gynecology
General Laboratory Tests
Health / Disability Related Counseling
General Counseling Services
Disease / Disability Information
General Medical Care
HIV Testing
Community Clinics
General Dentistry
Thanksgiving Baskets
COVID-19 Diagnostic Tests
Medical Social Work
Tuberculosis Screening

American Diabetes Association (ADA) Upstate New York Office (Service Group)

What's Here

Health / Disability Related Support Groups
Disease / Disability Information
Specialized Information and Referral
Chronic Disease Self Management Programs

Scleroderma Foundation - Tri-State Chapter (Service Group)

What's Here

Health Related Advocacy Groups
Disease / Disability Information
Funding

Resource Center for Patients & Families - Roswell Park Comprehensive Cancer Center

A cancer support, information & referral center. Offers support, lending library of laptops, books and DVDs, comprehensive library of local, regional and national cancer support organizations for diagnosed patients, their caregivers and family/friends. Current and reliable information on cancer surgery, chemotherapy, radiation medicine, rehabilitation and survivor issues, research. Provides free wigs, scarves, hats and referrals to Look Good Feel Better services.

What's Here

Wigs
Disease / Disability Information
Specialized Information and Referral

Alzheimers Association WNY Chapter (Service Group)

What's Here

Adult In Home Respite Care
Clinical Trials
Specialized Information and Referral
Medical Information Services
Disease / Disability Information
Caregiver Consultation and Support
Legal Counseling
Caregiver Training
Long Term Care Options Counseling
Individual Advocacy

CROHN'S AND COLITIS EDUCATION | CROHNS AND COLITIS FOUNDATION OF AMERICA-WESTCHESTER CHAPTER

Offers information in various format about colitis, including ulcerative colitis, and Crohn's Disease.

What's Here

Disease / Disability Information
Internet Information Resources

FAMILIES MEETING FOR INFORMATION TO LEARN, INSPIRE, EMPOWER, AND SUPPORT FAMILIES | MENTAL HEALTH ASSOCIATION IN ULSTER COUNTY (MHA)

Family education and support group. Information about developmental disabilities, educational strategies, and coping techniques are presented. Information from the regional and state office of Mental Retardation and Developmental Disabilities also available.

What's Here

Support Group Development Programs
Disease / Disability Information

CROHN'S AND COLITIS EDUCATION | CROHN'S AND COLITIS FOUNDATION OF AMERICA-FAIRFIELD/WESTCHESTER CHAPTER

Offers information in various format about ulcerative colitis, and Crohn's Disease, IBD medications, surgery, guides for parents and teachers, and about the chapter run fund raising programs and special events.

What's Here

Disease / Disability Information

EDUCATIONAL PROGRAMS | EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK

Educational programs are available for students, school employees and community groups. The purpose is to provide seizure recognition and information about appropriate first aid and information in order to foster acceptance of those living with the disorder.

What's Here

Disease / Disability Information

EPILEPSY INFORMATION AND REFERRAL - EMPOWERING PEOPLE'S INDEPENDENCE | EMPOWERING PEOPLE'S INDEPENDENCE

Provides informational materials related to problems surrounding epilepsy, its causes, warning signs, and means of dealing with problems caused by epilepsy.

What's Here

Medicaid Information/Counseling
Disease/Disability Information
Case/Care Management
Health/Disability Related Counseling
Protection and Advocacy for Individuals With Disabilities
Disability Awareness Training

Healthy Neighborhoods Program (HNP) - ECDOH

Provides environmental information, products, and a home safety survey by Health Inspectors/Educators. Home visits include an assessment for indoor air quality, asthma control, carbon monoxide poisoning, fire and burn safety, lead poisoning hazards, unintentional injury, smoking cessation, and housing and property maintenance. Following the home assessment, intervention products and services are provided according to need and interest. Free products include: smoke detectors and batteries, CO detectors, child safety products, cleaning supplies, asthma trigger management supplies, and radon test kits to qualifying families.

What's Here

Carbon Monoxide Detectors
Radon Information
Carbon Monoxide Information
Smoke Alarms
Lead Information
Home Safety Devices
Indoor Air Pollution Information
Home Safety Evaluations
Cleaning Products
Fire Prevention Information
Disease / Disability Information
Radon Testing

COMMUNITY HEALTH EDUCATION CLASSES | SAINT JOHN'S RIVERSIDE HOSPITAL – ANDRUS PAVILION

Provides support groups and a variety of educational programs including the Women's Health Series, smoking classes, diabetes classes, nutritional counseling, safe sex and more.

What's Here

Health / Disability Related Support Groups
General Sexuality / Reproductive Health Education
Disease / Disability Information

HUDSON VALLEY HEALTH SPECIALTIES, INC. | THE ARC MID-HUDSON

Hudson Valley Health Specialties, Inc. and Ulster Rehabilitation Clinic: Services include primary medical care, psychiatric, dental, vision, and psychology as well as speech, occupational and physical therapies among others. Also offers specialized autism training and services.

What's Here

Dental Care
Vocational Rehabilitation
Podiatry / Foot Care
Disease / Disability Information
Day Treatment for Adults With Developmental Disabilities
Neurology

LYME DISEASE PREVENTION | ORANGE COUNTY DEPARTMENT OF HEALTH

The Health Department’s Lyme Disease Prevention Program works with the public and with health care providers to reduce the incidence of Lyme Disease in Orange County.

What's Here

Disease / Disability Information

AMERICAN CANCER SOCIETY (ACS) - ROAD TO RECOVERY (TRANSPORTATION) | AMERICAN CANCER SOCIETY (ACS)

Help for patients and their families, including: assisting patients at Cayuga Medical Center cancer-related information, referral and support community and online support groups Look Good . . . Feel Better, one-time meeting with area cosmetologists who help female cancer patients with appearance-related side effects of cancer treatments Reach to Recovery, one-on-one telephone support for women with breast cancer transportation to treatments Hope Lodge, free place to stay during treatment, available throughout the countryLive Web Chat: https://www.cancer.org/about-us/online-help/contact-us.html

What's Here

Health/Disability Related Support Groups
Disease/Disability Information
Appearance Enhancement Consultation Programs

COMMUNITY AND CONSUMER SERVICES | AMERICAN DIABETES ASSOCIATION

* Provides advocacy, research, and education about diabetes to professionals and the general public.

* Offers fundraising events.

What's Here

Disease/Disability Information
Public Awareness/Education
Special Libraries

CANCER RESOURCE INFORMATION | CANCER CARE

Provides information about cancer, diagnosis, and treatment rights, including in Spanish. Helps patients to know what questions to ask and the answers to listen for. Offers teleconferences on varying topics. Also offers information and referrals to resources that the patient and their family may need.

What's Here

Internet Support Groups
Disease / Disability Information
Specialized Information and Referral

Advocacy and Case Management Services | Epilepsy-Pralid (EPI) - Main Site

Offers information and referral services, education on epilepsy, developmental disabilities and on traumatic brain injury. Case management; Medicaid service coordination; Health Homes; Family support services; Structured day and evening programs; Support groups, counseling; Employment/vocational counseling ;Community habilitation; Residential services; and Camp EAGR - Residential summer camp for children with epilepsy.

What's Here

Parent Support Groups
Protection and Advocacy for Individuals With Disabilities
Case / Care Management Referrals
Developmental Disabilities
Children's In Home Respite Care
Disease / Disability Information
Developmental Disabilities Social / Recreational Programs
Epilepsy

Preschool Special Education Program (PSEP) | Chemung County DSS

Provides referrals to the appropriate school district's Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

What's Here

Disease / Disability Information
Children and Youth With Disabilities / Health Conditions
Specialized Information and Referral

Disability Information and Support Services | Happiness House Finger Lakes Cerebral Palsy Association - Canandaigua

Provides clinical services to individuals with disabilities and their families including treatment coordination during the eligibility process and while accessing additional agency services; advocacy with other agencies when additional services are needed; psychological services including assessments and therapy; social work; nursing services; nutrition services and rehabilitation counseling. As well as early identification assistance.

What's Here

Early Intervention for Children With Disabilities / Delays
Developmental Assessment
Protection and Advocacy for Individuals With Disabilities
Parent to Parent Networking
Independent Living Skills Instruction
Special Education Assessment
Early Identification Programs
Disease / Disability Information
Attendant Services for People With Disabilities
Itinerant Education Services
Public Special Schools

Health Services | Trillium Health (Admin Site)

Offers case management including advocacy and empowerment, nutrition assistance, and one-on-one volunteer support program to clients and families. Provides referrals related for medical and legal issues, spiritual needs, mental health support, HIV antibody testing, and prevention education programs focusing on: HIV information, prevention, and risk reduction.

What's Here

Long Term Case / Care Management
AIDS / HIV
Confidential HIV Testing
Disease / Disability Information